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The physically active non-smoker can also have an Alpha-1 Antitrypsin Deficiency

Episode 2 of 3 with Dr Helene Møller Frost, at the Department of Pulmonary Medicine at Aalborg University Hospital.

She often comes across patients with Alpha-1 Antitrypsin Deficiency, who in her opinion have gone way too long with an overlooked diagnosis.

Alpha-1 Antitrypsin Deficiency is often confused with asthma, especially in patients who are physically active non-smokers. Even specialists in lung disease stick to the wrong diagnosis and fail to take the necessary blood test.

In this episode of A1R TIME, Helene Møller Frost reviews, among other things, a case with a patient who went with symptoms of Alpha-1Antitrypsin Deficiency for almost 20 years, without any doctor reacting on the signals.

Between 2,500 and 3,000 Danes are estimated to suffer from Alpha-1 Antitrypsin Deficiency, but only 10 percent of them are diagnosed.

A1R TIME is initiated by CSL Behring. Our goal is to spread awareness about Alpha-1 Antitrypsin Deficiency and to create a community for all affected by the diagnosis.

Want to share your story? Send us an email: info@cslbehring.com 

 

More episodes

When should you test for Alpha-1 Antitrypsin Deficiency?

Episode 3 of 3 with Dr Møller. Have you tested your COPD and asthma patients for Alpha-1 Antitrypsin Deficiency?

Many patients are diagnosed with asthma or COPD when some of them in reality suffer from Alpha-1 Antitrypsin Deficiency. This is why Helene Møller Frost encourages general practitioners to take a blood test for Alpha-1 Antitrypsin Deficiency on patients with asthma or COPD.

Read more here >>

Suffer from Alpha-1 or are you asymptomatic?

Episode 1 of 3 with Dr Møller. What is the difference between suffering from Alpha-1 Antitrypsin Deficiency and being an asymptomatic carrier of the disease? Doctor Helene Møller Frost explains.

Read more here >>